Personal Stories

Milestone Day for Riley’s little sister

Milestone days are always the toughest and yesterday was emotionally challenging. We took this little superhero to go and get her 6 month vaccinations. She was a gem, we had no complications and we can now say she’s made it through a particularly fragile time of her life. What hurts is that these are needles […]

Jasmine’s Story – Pneumococcal Disease

Jasmine’s Story – As told by her mother Andrea Identical twins Gabrielle and Jasmine were delivered on Christmas Eve 2002. Their long term survival was questionable from day one. They both had heart defects and severe respiratory problems, however most devastatingly they were both found to be suffering from congenital bone marrow failure disease. I […]

Olivia’s Story – Whooping Cough

My daughter was just 3 weeks old when she had a runny nose and sneeze, with mildly not wanting feeds as much. This went on for a few days but I knew the early symptoms of whooping cough (thanks to light for Riley) so I took her to the doctor, the doctor didn’t want to […]

Jazmyn’s Story – Meningococcal disease

On Tuesday 25th August Jazmyn was a bright bubbly happy little girl, but at 10pm that night things took a turn in a direction that no one could have seen coming. It started with flu like symptoms and a high temp, which we thought nothing off at the time due to the rest of the […]

Fern’s Story – Whooping Cough

In September 2015, my 5 month old Fern had a cold. We went to the doctors a few times within a 3 week period and I was told she had asthma, then bronchitis. One night she couldn’t breathe while coughing and it seemed like she was choking, so I raced her up to the hospital. […]

Vacine Preventable Diseases

‘If I could turn back time I would protect myself.’

‘If I could turn back time I would protect myself.’ A brave Gold Coast mother speaks out about her baby daughter Eva who has been hospitalised for weeks with whooping cough, and talks about her heartbreaking regrets in her decision to reject the whooping cough vaccine during her pregnancy. This is the very sad reality […]

A Letter to Riley – one year on.

Dear Riley, Today it has been one year since we held you as you left this world, and left a huge un-repairable hole in our hearts. We whispered promises to you which we have tried to keep. All the time we would have spent cuddling you has been channeled into trying to sure this doesn’t […]

A Mother’s Plea – Light For Riley

A year ago I was sitting there helpless next to Riley and decided to put this plea up on my Facebook, urging friends and family to have a whooping cough vaccination. “If you haven’t been immunised against whooping cough (pertussis) please consider getting it done. Heartbreaking to watch 4 week old Riley struggle with it […]

baby booties

Dad’s Perspective on Grief – Greg Hughes

I found this photo while I was shuffling through our folders and even when Rileybear was still brand new you could see the incredible amount of love our daughter possessed for him. Our little girl has had to do so much growing up in the past 12 months and for me it’s been the most […]

Riley’s Story – Whooping cough

Riley Hughes was born a gorgeous and healthy baby boy on February 13th, 2015. He was our second child and we were so delighted to have him in our family. At three weeks of age, he started displaying mild cold-like symptoms, and developed an occasional cough. We called out a locum, who assured us he […]